Saturday, August 29, 2009
Uncle Joe
Putting Peter Down (Redux)
Sunday, August 23, 2009
Aunties and Uncles
Peter tells his Auntie Megg a story during a recent visit from Calgary.
Peter and his Uncle Scott do "Blue Steel".
Peter making eyes at his Auntie Liane. Liane is all set to go back to med school after spending a couple of weeks with us. We will miss her lots.
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That's it for now, dear reader. Stay tuned for future posts, in which I will introduce you to Peter's Uncles Chris, Nick and Joe and his Aunties Esti and Meghan L ...
Wednesday, August 19, 2009
Saturday, August 15, 2009
Face Time
Dr. Morty
Monday, August 10, 2009
The Other Other Shoe
The problem with a PDA is that some oxygenated blood gets mixed in with the deoxygenated blood in the pulmonary artery, where it is pumped to the lungs and, essentially, reoxygenated, rather than being pumped out to the rest of the body. In other words, to the extent of the diverted blood flow, the heart is doing double the work. This can put strain on the heart and lead to congestive heart failure.
So, dear reader, as I was saying, when Peter was in the NICU, he was identified as having a small (about a mm) PDA. Since his PDA seemed to be asymptomatic (i.e., he had no signs of congestive heart failure), and since he did not respond to the use of drugs to help it close, Dr. Han decided that the best course of action was to do nothing and wait for it to close on its own (which it usually does). She scheduled a follow-up for three months from the time Peter was discharged from Sunnybrook to level 2 care, which then seemed a lifetime away.
Until now, we had been hopeful that Peter's PDA had indeed closed on its own, and all of his doctors at St. Joe's had assured us that they thought it had. In fact, Dr. Han also assumed that was the case when she examined him on Friday, but performed an echocardiogram (which is an ultrasound picture of the heart) to be sure. As it turns out, the PDA is still there. This means that, for now, Peter still needs to be monitored. If he starts to show any signs of congestive heart failure (e.g., he has trouble eating or gaining weight), or if the duct doesn't close on its own in the next six months or so, then he will need to have a procedure to close it.
The good news is that, now that Peter's a little bigger, that would not mean surgery. Rather, the PDA can be closed through a non-invasive procedure whereby a catheter is inserted up through the groin into the heart, as explained here, on the Sick Kids website.
All of which is to say, dear reader, that it looks like this is not the other other shoe just yet. It's just that it stinks just a little bit to know that you have to watch your son for signs of something as scary-sounding as congestive heart failure. It also stinks to know that Peter's little heart is, to some extent, working twice as hard as it needs to. As if he didn't have enough to worry about.
Tuesday, August 4, 2009
The Ground Shifts (or, He Sleeps)
And here are Uncle Joe and Auntie Esti's reactions to Peter's behaviour (Esti, Joe's lovely and charming fiancee, is impressed but Joe, being a skeptic, is suspicious):
It didn't stop there. For one thing, Mark continued to be able to put Peter down in the Amby Bed for one 2-hour stretch or so at night (my strategy of using CBC talk radio podcasts as white noise was less successful, despite being scientifically justifiable). For another, last Monday, I was able to sit Peter down in the vibrating chair for an hour-long nap, with a bonus half-hour of contented quiet time:
And then, dear reader, something truly magical happened. Last Tuesday night, Peter slept in the Amby Bed, in our room, for 4.5 hours. In a row. I have never felt so refreshed (actually, I was initially mostly terrified, so sure was I that the young lad had stopped breathing, and I continued to feel a bit rattled for the rest of the night). I was full of hope that our sleep problems had been solved. Until, that is, the doom-and-gloom team at the developmental follow-up clinic stepped in. Not only did they pronounce the Amby Bed to be unsafe for a preemie (this, an interesting development, given that I had encountered the hammock in Dr. Sears's The Premature Baby Book, in which he specifically endorses it for such a babe), but they also made us feel like pretty much The Worst Parents In The World for not having gotten Peter into a Healthy Sleep Pattern. For those who are wondering, a Healthy Sleep Pattern involves placing your still-awake infant, unswaddled, flat on his back in a crib, with no blankets, pillows, or sleep positioners of any kind, in which position said infant, if properly parented, will promptly soothe himself to sleep (actual parents, or actual human beings who have ever tried to get yourselves to sleep, you can stop laughing now).
Since then, with hopes dashed and egos crushed, we have been doggedly trying to put Peter down to sleep at night in a play yard bassinet next to our bed. We have realized a couple of things. First, Peter doesn't actually have to be sleeping when we put him down, so long as he is sleepy. With his beloved pacifier in mouth (a rather high-maintenance prop, since he isn't awesome at keeping it there for prolonged periods), he very often does doze off on his own under the right circumstances. Second, the lad seems to be getting a little more comfortable in his own skin, and doesn't flail about and lose his mind when placed on his back in quite the same way as he did when we first brought him home. All of which is to say, Peter has in fact been sleeping, though sporadically, in his own bed for the last several days. Last night, he even managed to do so for a 3.5 hour stretch ... no, not quite continuously (I had to reach over and replace the pacifier a few times), but it's a good start.
Great Grandma and Poppa Visit
And finally, my Grandma and Poppa with their first grandchild and first great-grandchild:
Play Date with Michelle and Jocelyn
Monday, August 3, 2009
Stop ... Tummy Time
Tummy time does not usually go this well: about 80% of the time, Master Peter despises the prone position (unless he has his pacifier in his mouth, in which case he promptly dozes off, which sort of defeats the purpose). However, since we've been told that doing 6-8 daily sessions of tummy time is critical to developing abdominal strength and gross motor skills, we persist. You can thank us later, son.